9-year-old Valeria Esakova has a difficult diagnosis: primary immunodeficiency. To live, every day she needs an injection. The monthly course of 28 injections costs 200 thousand rubles. For the year you need 2.8 million. There is no such money for the Gubkin family. Time after time, for a year and a half, they turned to the regional health administration. And time after time they were refused, explaining yes, the drug is vital for the child, but is not registered in Russia.
The required amount was helped by the Rusfond to collect, there they also made documents for the import of the drug into the country. But there was enough medicine for a year. So what is next? In desperation, the family appealed to journalists, and in parallel, the mother filed a lawsuit against the Belgorod Oblast Health Department (Lawyer Yesakovs is sure that the department should find an opportunity to import the medicine, but did not act for 1.5 years).
After the media started talking about the girl from Gubkin, after Sledky began the check, and the child rights ombudsman at the Belgorod region, Galina Piatykh, stepped in for the family, the Department of Health offered the parents a settlement agreement. Medicine officials promised that by June 1, the child would have medicine, Kommersant writes.
President of the League of Patient Advocates Alexander Saversky:
– There are many similar courts of patients with the state in the country. Even the profile law is called "On the circulation of medicines", there much is tied to the manufacturer. For example, only he can apply for registration of drugs. But such an opportunity should be in patients and doctors. Now, even beneficiaries refuse drugs because it is difficult to get them. This is a complete collapse of the drug supply system.